Terminally Ill Pediatric Patients Need Greater Access to Advance Care Planning

As awareness and acceptance of advance care planning gains ground among health care providers and the general public, children with life-limiting illnesses are sometimes left behind. Some stakeholders have sought to improve access to advance care planning for pediatric patients. Among them is the American Academy of Pediatrics (AAP), which recently released a set of […]

New Legislation Provides Reimbursement Boost to Community-Based Pediatric Palliative Care

There’s growing momentum behind the movement to finance serious illness care for children. The Illinois General Assembly recently passed a bill that requires private insurers and Medicaid plans in the state to include a community-based pediatric palliative and hospice benefit. Creating new revenue opportunities to sustain palliative care at a state level could open doors […]

Lack of Payment, Training Curtail Pediatric Palliative Care

Children who have life-limiting illnesses need palliative care as much as adults, but a slough of obstacles often prevents them from getting it. Many of the barriers that palliative care providers encounter — fears, misconceptions, limited reimbursement, lack of specialized clinical training — become even more complex when it comes to pediatrics. The bulk of […]

Illinois Approves Pediatric Palliative Care Benefit

The Illinois State Assembly has passed a bill to create an in-home palliative care benefit for children facing life-limiting conditions. The legislation will now go to Gov. J.B. Pritzker (D) for signature. Stakeholders told Hospice News that the measure could signal advancement on establishing a national palliative care benefit. The Pediatric Palliative Care Bill (SB.2384) […]