Pediatric Palliative Care Providers Seek to Improve Parental Engagement

Pediatric palliative care providers can sometimes struggle to engage parents and families. Parental engagement can be a difficult hill for pediatric palliative providers to climb. Families often contend with an array of competing practical, financial and medical obstacles related to managing a serious or life-limiting illness. Parents and guardians frequently experience feelings of stress, anxiety […]

Keys to Discussing ‘Hard Realities’ in Pediatric Advance Care Planning Conversations

Many clinicians across the health continuum lack the training and skill sets needed to have goals of care conversations for pediatric patients. Advance care planning discussions are an important, but oftentimes challenging key to supporting serious and terminally ill children and their families, according to Dr. Chris Adrian, a pediatric palliative care physician and writer […]

Hospices Must Leap Hurdles to Provide Pediatric Inpatient Care

Barriers to expanding pediatric inpatient hospice care include a lack of specialized facilities as well as staff who are sufficiently trained to provide those services. Children are an underserved population in the hospice realm, particularly when it comes to inpatient care. Seriously ill children and their families often do not have access to inpatient services, mainly […]

Dell Children’s, Hand to Hold Form Pediatric Partnership

Texas-based Dell Children’s Medical Center and has partnered with Hand to Hold to strengthen mental health support for families receiving home-based pediatric care. The partnership has been a year in the making. The two organizations last December piloted an in-hospital support program for neonatal intensive care unit (NICU) families in Austin, Texas. Hand to Hold, […]

George Mark Children’s House Launches Pediatric Palliative Nurse Training Program

George Mark Children’s House (GMCH) recently unveiled a pilot training program that aims to grow the pediatric palliative care nursing workforce, in partnership with The California State University (CSU) Shiley Haynes Institute for Palliative Care. The Hearst Foundation partly financed the program with a $150,000 grant. Establishing the GMCH Pediatric Palliative Care Nursing Education, Training, […]

Researchers Build Framework for Pediatric Palliative Care Growth

Researchers have found common threads in efforts to develop sustainable pediatric palliative care for underserved patients and families in need worldwide. Though demand is growing for pediatric palliative care, availability of these services is scarce at global levels, with staffing shortages and reimbursement issues as large culprits. Children are among the most underserved seriously ill […]

Children’s Health Foundation Develops Pediatric Palliative Care Training Program

Children’s Medical Research, Inc., is launching a pediatric palliative care professional training program at the University of Oklahoma Health Science Center (OUHSC). The organization, which does business as the Children’s Health Foundation of Oklahoma, will offer the program to practicing physicians in pediatrics and general family medicine, as well as nurses, nurse practitioners, physician assistants, […]

Lightways Triples the Size of Pediatric Palliative Care Program

Joliet, Illinois-based Lightways Hospice and Serious Illness Care has nearly tripled the capacity of its pediatric palliative care program, expanding in geography, staff, and patient census. The nonprofit’s pediatric program now has capacity for 120 patients. Lightways’ current pediatric census has risen to 100 patients, up from 40. Additionally, the program’s service area has extended […]

Homeland at Home Launches Community-Based Palliative Care Program

Pennsylvania-based Homeland at Home recently added community-based palliative care to its repertoire of services in response to rising demand for this care. Homeland previously provided facility-based palliative services and is now stepping into the home. The provider’s palliative care team includes a physician medical director, social worker and nurse practitioners who now offer in-home palliative […]

Pediatric Hospice and Palliative Clinicians Face High Burnout Risk

The unique needs of families and children facing life-limiting illness can wear pediatric palliative and hospice care clinicians especially thin, and the potential for burnout can leave providers even more short-staffed than many already are. Pediatric subspecialists are at a higher risk of burnout than others, according to authors of a 2020 study from the […]