Bristol Hospice has unveiled a new pediatric program dedicated to serving children with life-limiting illnesses and their families. A pilot of the Little Lights Pediatric Hospice program began in Hawaii and was unveiled on Tuesday. Bristol Hospice has plans to expand the new services in coming months across undisclosed locations. Launching a pediatric hospice service […]
Similar to adults, many seriously ill children prefer to die in the home versus in facility-based care settings. But several barriers are preventing greater access to goal-concordant, community-based pediatric palliative care delivery. The challenges in some ways mirror issues among adult populations such as insufficient clinical resources, caregiver burden or lagging family support in the […]
Gauging pediatric patient preferences can come with nuanced challenges as palliative care providers contend with a lack of consistent, standardized measures for these populations. Measurement of pediatric palliative care preferences is evolving compared to adult populations, said Dr. Toluwalasé Ajayi, director of pediatric palliative care and interim chief of palliative medicine at Rady Children’s Hospital-San […]
Ethical decision making can look vastly different when providing end-of-life care to pediatric populations compared to adults. The challenges have hospice focused on myriad ways to better navigate goal-concordant care delivery among youths. Stronger collaboration and staff education are needed to improve hospices’ ability to support families’ decisions as a child’s serious or terminal illness […]
Lawmakers in several states have proposed legislation supporting the establishment of pediatric hospice, respite and palliative care facilities in recent years. This could fuel more sustainable growth and access for seriously ill children and youths across the country. Pediatric patients and their families lack options when it comes to person-centered environments that address their unique […]
Supporting seriously ill children and youths can come with higher costs and greater complexities compared to adult populations. Sustaining pediatric hospice and palliative care programs involves employing dynamic referral and financial strategies in today’s health care landscape. Pediatric programs often face challenges when establishing a firm financial foothold, with funding a main obstacle hindering growth […]
Even with legislation in place designed to provide resources, several barriers exist that prevent expanded access to respite and hospice support for terminally ill pediatric populations and their families. This is according to Kim Marcum-Mercier, registered nurse at Cincinnati Children’s Hospital. Marcum is also the founder of Sarah House, a pediatric respite and end-of-life care […]
Serious and terminally ill children and their families often have limited options when it comes to pediatric hospice, respite and palliative care. A national public awareness program is seeking to change this trend. The National Center for Pediatric Palliative Care Homes (NCPPCH) in 2023 launched the Children’s Respite Homes of America campaign, which strives to […]
Founders of a new Iowa-based pediatric hospice facility have recently pushed legislation forward to help improve the availability of end-of-life support for terminally ill children and their families. Mason’s Light House is anticipated to open in 2027 or 2028, depending on state licensing processes and funding, according to Shanna Sieck, founder and board president of […]
The Foundation of Community Hospice & Palliative Care is fueling the launch of a new pediatric center in northern Florida that will support serious and terminally ill youths and their families. A groundbreaking ceremony for The Dorion Family Pediatric Center is set for Monday, Jan. 27. Construction of the new building is anticipated to complete […]
By continuing to use the site, you agree to the use of cookies. more information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
