A lack of trained staff and evolving health laws are among the leading barriers to expanding perinatal palliative and hospice care among underserved populations. Populations of color often see disparities when it comes to access to perinatal palliative and hospice care, according to Dr. Marilyn Fisher, physician at Albany Medical College, part of the New […]
The HAP Foundation is partnering with the Child Life Hospice and Palliative Network (CLHPN) to improve awareness of and access to child life services among seriously ill youths and their families. The HAP Foundation helps support research and education in hospice and palliative care. Through the partnership, the organization will help fuel CLHPN’s efforts to […]
Arizona-based Phoenix Children’s Hospital has developed a pediatric hospice and palliative care fellowship program that is positively impacting access to these services. An important piece of pediatric palliative clinical education involves developing a deep level of communication skills to help families navigate complicated decision making around serious illness care, according to Dr. Tressia Shaw, palliative […]
Pediatric palliative care providers can sometimes struggle to engage parents and families. Parental engagement can be a difficult hill for pediatric palliative providers to climb. Families often contend with an array of competing practical, financial and medical obstacles related to managing a serious or life-limiting illness. Parents and guardians frequently experience feelings of stress, anxiety […]
Many clinicians across the health continuum lack the training and skill sets needed to have goals of care conversations for pediatric patients. Advance care planning discussions are an important, but oftentimes challenging key to supporting serious and terminally ill children and their families, according to Dr. Chris Adrian, a pediatric palliative care physician and writer […]
Barriers to expanding pediatric inpatient hospice care include a lack of specialized facilities as well as staff who are sufficiently trained to provide those services. Children are an underserved population in the hospice realm, particularly when it comes to inpatient care. Seriously ill children and their families often do not have access to inpatient services, mainly […]
Texas-based Dell Children’s Medical Center and has partnered with Hand to Hold to strengthen mental health support for families receiving home-based pediatric care. The partnership has been a year in the making. The two organizations last December piloted an in-hospital support program for neonatal intensive care unit (NICU) families in Austin, Texas. Hand to Hold, […]
George Mark Children’s House (GMCH) recently unveiled a pilot training program that aims to grow the pediatric palliative care nursing workforce, in partnership with The California State University (CSU) Shiley Haynes Institute for Palliative Care. The Hearst Foundation partly financed the program with a $150,000 grant. Establishing the GMCH Pediatric Palliative Care Nursing Education, Training, […]
Researchers have found common threads in efforts to develop sustainable pediatric palliative care for underserved patients and families in need worldwide. Though demand is growing for pediatric palliative care, availability of these services is scarce at global levels, with staffing shortages and reimbursement issues as large culprits. Children are among the most underserved seriously ill […]
Children’s Medical Research, Inc., is launching a pediatric palliative care professional training program at the University of Oklahoma Health Science Center (OUHSC). The organization, which does business as the Children’s Health Foundation of Oklahoma, will offer the program to practicing physicians in pediatrics and general family medicine, as well as nurses, nurse practitioners, physician assistants, […]
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