Greater access and awareness of pediatric hospice and respite services could help improve outcomes as family caregivers nationwide struggle to support a growing population of medically fragile and complex children. Families face several challenges caring for serious and terminally ill children in the home, according to Shekinah Eliassen, CEO of George Mark Children’s House (GMCH). […]
Connecticut-based Regional Hospice is expanding its pediatric program following receipt of a recent $2 million grant. The grant came from the state government and will go a long way in terms of the ability to hire specialized pediatric hospice care professionals, said ToniAnn Marchione, president and CEO of Regional Hospice. Additionally, the funds will allow […]
Capital Caring Health has partnered with the AI platform LeadStory to spread awareness about its pediatric hospice and palliative care program. A 30-second video produced by the Chapters Health affiliate will appear on the app highlighting its Capital Caring Kids program. Launched in 2022, the LeadStory AI app is an interactive personalized news service for […]
Bristol Hospice has unveiled a new pediatric program dedicated to serving children with life-limiting illnesses and their families. A pilot of the Little Lights Pediatric Hospice program began in Hawaii and was unveiled on Tuesday. Bristol Hospice has plans to expand the new services in coming months across undisclosed locations. Launching a pediatric hospice service […]
Similar to adults, many seriously ill children prefer to die in the home versus in facility-based care settings. But several barriers are preventing greater access to goal-concordant, community-based pediatric palliative care delivery. The challenges in some ways mirror issues among adult populations such as insufficient clinical resources, caregiver burden or lagging family support in the […]
Gauging pediatric patient preferences can come with nuanced challenges as palliative care providers contend with a lack of consistent, standardized measures for these populations. Measurement of pediatric palliative care preferences is evolving compared to adult populations, said Dr. Toluwalasé Ajayi, director of pediatric palliative care and interim chief of palliative medicine at Rady Children’s Hospital-San […]
Ethical decision making can look vastly different when providing end-of-life care to pediatric populations compared to adults. The challenges have hospice focused on myriad ways to better navigate goal-concordant care delivery among youths. Stronger collaboration and staff education are needed to improve hospices’ ability to support families’ decisions as a child’s serious or terminal illness […]
Lawmakers in several states have proposed legislation supporting the establishment of pediatric hospice, respite and palliative care facilities in recent years. This could fuel more sustainable growth and access for seriously ill children and youths across the country. Pediatric patients and their families lack options when it comes to person-centered environments that address their unique […]
Supporting seriously ill children and youths can come with higher costs and greater complexities compared to adult populations. Sustaining pediatric hospice and palliative care programs involves employing dynamic referral and financial strategies in today’s health care landscape. Pediatric programs often face challenges when establishing a firm financial foothold, with funding a main obstacle hindering growth […]
Even with legislation in place designed to provide resources, several barriers exist that prevent expanded access to respite and hospice support for terminally ill pediatric populations and their families. This is according to Kim Marcum-Mercier, registered nurse at Cincinnati Children’s Hospital. Marcum is also the founder of Sarah House, a pediatric respite and end-of-life care […]
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