Laying Legislative Groundwork for Sustainable Pediatric Respite, Hospice Care

Law makers in several states have proposed legislation supporting the establishment of pediatric hospice, respite and palliative care facilities in recent years. This could fuel more sustainable growth and access for seriously ill children and youths across the country. Pediatric patients and their families lack options when it comes to person-centered environments that address their […]

Advocacy Program Pushes for Improved Pediatric Hospice, Respite, Palliative Care

Serious and terminally ill children and their families often have limited options when it comes to pediatric hospice, respite and palliative care. A national public awareness program is seeking to change this trend. The National Center for Pediatric Palliative Care Homes (NCPPCH) in 2023 launched the Children’s Respite Homes of America campaign, which strives to […]

The Tangled Web of Pediatric Palliative Care Payment and Policy

A complex web of state regulations and reimbursement systems can challenge pediatric palliative care access for seriously ill children and their families. The nation’s fragmented health care system lacks clear guidance when it comes to navigating chronic, complex conditions in children, adolescents and young adults, according to Jonathan Cottor, CEO and founder of the National […]

Hospices’ Unanswered Questions: Filling the Research Gaps

Research around hospice care has come a long way. But data gaps exist when it comes to expanding understanding of some aspects of end-of-life care delivery. A range of researchers has amassed a growing base of data on hospice, with some common themes tied to quality outcomes, costs, length of stay and general inpatient care. […]

The Forces Driving, Impeding Access to Pediatric Palliative Care

Reimbursement pressures, workforce strains and lagging awareness represent pain points preventing greater utilization of palliative care. These factors can weigh even heavier on access and quality of life for seriously ill children and their families in need of these services. The road to pediatric palliative care can be filled with many barriers for patients and […]